Author Topic: This is not fun!  (Read 1050 times)

keith_h

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Re: This is not fun!
« Reply #30 on: June 13, 2025, 03:48:11 PM »
I'm sorry to hear about your wife's problems but it is good that her condition seems to be improving. I hear you on the drive to St. Charles. Having to cross the river can be a real pain driving wise and has only gotten worse since we left the area. Hopefully you will be able to get your wife closer to home for both your sake.     

cozmik_cowboy

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Re: This is not fun!
« Reply #31 on: June 13, 2025, 06:50:46 PM »
She was moved to DeKalb County Rehab & Nursing Center today!
Maybe now She can get some actual care! 
I did spend a couple hours there with Her this evening, and the new place may not be the rolls Royce of rehab joints, but it's at least a nice solid Camry - whilst the other place would struggle to approach a totaled Vega.......


Peter
"Is not Hypnocracy no other than the aspiration to discover the meaning of Hypnocracy?  Have you heard the one about the yellow dog yet?"
St. Dilbert

"If I could explain it in prose, i wouldn't have had to write the song."
Robt. Hunter

David Houck

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Re: This is not fun!
« Reply #32 on: June 14, 2025, 05:46:00 AM »
Good to hear!

hammer

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Re: This is not fun!
« Reply #33 on: June 17, 2025, 02:42:36 PM »
Glad to hear she's finally in a place at which you both feel comfortable (like a Camry).  It's amazing the state of rehab in this country compared to many European nations. Hip replacement in the U.S., they are shoving you out the door a day or two later. You need to get a driver to take you to PT/OT appts. Based on what my friends in Europe tell me, if you undergo the same procedure in most Scandinavian countries, the Czech Republic, Germany, etc. you are headed to a "spa" (i.e., rehabilitation facility) for 3-4 weeks where you actually get great care. Some good friends of mine in the Czech Republic had a Dachshund who underwent spinal cord surgery after partial paralysis. He received better rehab, (at approx. $5.00 U.S./visit than most human get here.

cozmik_cowboy

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Re: This is not fun!
« Reply #34 on: June 17, 2025, 08:49:11 PM »
Glad to hear she's finally in a place at which you both feel comfortable (like a Camry).  It's amazing the state of rehab in this country compared to many European nations. Hip replacement in the U.S., they are shoving you out the door a day or two later. You need to get a driver to take you to PT/OT appts. Based on what my friends in Europe tell me, if you undergo the same procedure in most Scandinavian countries, the Czech Republic, Germany, etc. you are headed to a "spa" (i.e., rehabilitation facility) for 3-4 weeks where you actually get great care. Some good friends of mine in the Czech Republic had a Dachshund who underwent spinal cord surgery after partial paralysis. He received better rehab, (at approx. $5.00 U.S./visit than most human get here.

Amazing what they can do in civilized countries, ain't it?

So, yesterday sometime between breakfast & lunch, She sprouted a rash across Her whole back, nape of the neck down almost to the knees; they stopped a med She'd started a on the 11th.
This evening, I was just getting ready to come home when they came in and started pushing on Her abdomen; "Does this hurt?" (turns out it did) and talking to their NP on the phone.  Seems She had elevated levels of white cells, liver enzymes, etc., on Her AM blood workup & they just got the results.
Transfer to the local ER where She was admitted with indications of an infection approaching sepsis.
I am not having a good few months here, folks..............

Peter
"Is not Hypnocracy no other than the aspiration to discover the meaning of Hypnocracy?  Have you heard the one about the yellow dog yet?"
St. Dilbert

"If I could explain it in prose, i wouldn't have had to write the song."
Robt. Hunter

Artgeckko

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Re: This is not fun!
« Reply #35 on: June 17, 2025, 11:23:04 PM »
Very sorry to hear.
That’s extremely disconcerting, and I hope that they have recognized the onset of sepsis and can administer some antibiotics to help.
You and your wife will always be the best advocate for care. Not to be overzealous, but watch them like a hawk.  Sometimes medical facilities become complacent, sometimes it’s just the dynamic between shifts on what level of care is received.
Hang in there.  Agreed, not an easy stretch for sure. 
Sending good thoughts and energies to you and your wife, and hoping for an easier time ahead.

Ed

pauldo

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Re: This is not fun!
« Reply #36 on: June 18, 2025, 02:56:13 AM »
Doubling down on the healing thoughts.

David Houck

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Re: This is not fun!
« Reply #37 on: June 18, 2025, 04:25:27 AM »
Hoping the ER visit gets things back on a good path quickly.

gearhed289

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Re: This is not fun!
« Reply #38 on: June 18, 2025, 06:44:45 AM »
More positive thoughts for you and yours.

cozmik_cowboy

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Re: This is not fun!
« Reply #39 on: September 09, 2025, 11:15:42 AM »
Dave pointed out to me that I had been remiss in updating you on our travails; sorry about that.
They did a "home evaluation" and She was able - just - to make it up the stairs to the bedroom (house is from 1899, before building codes, so the risers are taller than would be allowed now, and the treads are shallower), and on July 17th, She finally came home.
And halfway the stairs, She just sank down & I (with my post-surgical 10# lifting limit) had to get Her back up again - and 3 more times before the top.
Next night, from the bottom of the stairs (7 steps up and westward, 3 landings, then 7 more up & east) to our bed (about 10' from the top of the stairs) took 1.75 hours, and much pain.
She slept on the couch the next 2 nights, and then we got a hospital bed in the living room.
And.......Friday they came & took the bed away; She struggles, but much work with home PT got Her to where she can make it up every time (I put a folding chair on the upper landing so She can rest on the way).
She is getting around with a walker; 6 weeks of neither standing nor eating left Her just a tad weak, so it'll still be a journey, but I really think She'll be fully & independently mobile in a few more months.
AND:  After over a month of being fairly sure that one of the 3 different bad med reactions would keep me from ever being able to have conversation with Her again, She is now fully back (well, She does have very mild Vascular Cognitive Impairment from about 100 TIAs, but back to Her pre-op baseline).
As for me, I am slowly recovering some flexibility - though, as I am now from about the sternum to the hips one solid piece, it ain't never agonna be like it used to was.......
For about a month after the surgery, I only had surgical pain; the pain I had the surgery for was clear gone.  Then Her 3rd bad reaction put Her back in the hospital for a week - which means that I was sitting in Northwestern Medicine visitors' chair for a bout a week.  I am firmly convinced they purchase said chairs from the Tomás de Torquemada Furniture Company, and the pain started coming back.  Never got as bad as it was pre=op, but I was back to having lie down 3-4 times to ease it in the course of getting dressed.
That had me really worried, but it is starting to resolve; still hurts some, but I can get dressed non-stop, and have gone from 4 Percocets & 3 tramadols/day to 4 10mg Norcos & 3 Tramadols to 3 7.5mg Norcos & 3 Tramadols to now 2 5mg Norcos (Am & PM) & 4 Tramadol (1 AM, 1 PM, & 2 midday); by Jan 1, I should be opioid-free.  And I'm hoping that by stepping down like this, I will a milder withdrawal than the previous 3 times.  Not really difficult, but not exactly a fun week & half either.........
And I can vouch for the fact that the efficacy of opioids is greatly enhanced by cannabis - and thus lower dosages are possible.


Peter
"Is not Hypnocracy no other than the aspiration to discover the meaning of Hypnocracy?  Have you heard the one about the yellow dog yet?"
St. Dilbert

"If I could explain it in prose, i wouldn't have had to write the song."
Robt. Hunter

David Houck

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Re: This is not fun!
« Reply #40 on: September 09, 2025, 12:34:03 PM »
I appreciate the update.  Sounds like there is good progress for both of you, but painfully slow.  Glad to hear she is back home with you.

pauldo

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Re: This is not fun!
« Reply #41 on: September 09, 2025, 04:03:51 PM »
Peter, that is truly difficult to read.  Living it must be super tough… but look at you!  Making it happen!  Taking what life gives you and moving forward, very inspiring.

Thanks for the update.

Paul (who admittedly was hesitant to post the Zeppelin cover in a different thread as I understand you aren’t a fan)  ;)

BeenDown139

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Re: This is not fun!
« Reply #42 on: September 09, 2025, 04:27:35 PM »
best wishes from the house O'BeenDown.
Been down...now i'm out!

lbpesq

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Re: This is not fun!
« Reply #43 on: September 09, 2025, 07:06:25 PM »
Having visited the Cozmik homestead, and wrestled a big heavy suitcase up those tall, narrow, winding stairs, I can understand  the difficulty for both of you.   Good to hear things are at least slowly moving in the right direction.  Several years ago, Senior Management spent a few days in the Transitional Care Unit (slightly less serious than ICU).   Thankfully they had a Barcalounger in her room that I slept in.   Getting older can suck, but it still beats the alternative!

Bill, tgo