Author Topic: Myelogram - anyone had one?  (Read 189 times)

bigbadbill

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Myelogram - anyone had one?
« on: April 18, 2009, 05:25:23 AM »
With regards to my continuing back/neck problems I'm down for a myelogram soon. I'm slightly concerned about the procedure (more so because of the possibility -however slight - of arachnoiditis).  I've discussed this with my doctor who feels there's no need for concern (unfortunately have not been able to discuss this with the neurosurgeon; heck, wasn't able to discuss ANYTHING with the neurosurgeon - that's the NHS for you)but I've still got some nagging doubts. I'd appreciate any comments from anyone with experience.

gregduboc

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Myelogram - anyone had one?
« Reply #1 on: April 18, 2009, 06:25:44 AM »
Shaun,
Perhaps there is something here that might help you with one of your questions/worries:
http://www.radiologyinfo.org/en/info.cfm?pg=myelography#part_nine
 
Greg

olieoliver

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Myelogram - anyone had one?
« Reply #2 on: April 18, 2009, 06:33:24 AM »
While I've never had anything injected into my spine such as dyes I have had spinal fluid removed for some test a couple of years ago. Arachnoiditis is one of the risk the surgeon did mention to me at the time and did explain it very well to me. I personally would try to speak with the nerosurgeon again and to be honest if he can't take the time to address my concerns I'd find someone else.  
 
I pray all goes well for you Shaun,
OO

jalevinemd

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Myelogram - anyone had one?
« Reply #3 on: April 18, 2009, 07:37:58 AM »
I have performed countless myelograms and would be happy to address any concerns you might have. For what it's worth, In my 10 years, I've never had a case of arachnoiditis...nor have my partners. I think it may have been more common years ago with the higher osmolarity contrast agents, but I'm not sure.

olieoliver

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Myelogram - anyone had one?
« Reply #4 on: April 18, 2009, 08:20:25 AM »
Bravo Jonathan. That's what I love about this forum, such a wide array of knowledgable members that are always ready and willing to help.
 
OO
PS. Jonathan will we get a chance to see those 2 fine guitars at the Chicago Gathering next month?

bigbadbill

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Myelogram - anyone had one?
« Reply #5 on: April 18, 2009, 10:15:01 AM »
Thanks for the info and thoughts guys. I love this place; for a start, how often can you go on a guitar forum and receive a post from someone who has actually performed a medical procedure you're worried about?
 
BTW Jonathan, that buckeye guitar is incredible!

jalevinemd

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Myelogram - anyone had one?
« Reply #6 on: April 18, 2009, 10:31:51 AM »
Barring any last minute schedule glitches, both the Little Bear and Stubby will be at the gathering.

terryc

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Myelogram - anyone had one?
« Reply #7 on: April 19, 2009, 01:17:40 PM »
Techniques have improved dramatically over the years Bill, many years ago there was controversy over the radio-opaque dye they used-Myelodil but that has been superseded by much better contrasts.
As you know bill us UK residents are contending with MRSA due to the abuse of antibiotics but things are getting better.
But just a thought here...why haven't you been offered a MRI scan??. This is totally non invasive and gives a much better diagnostic picture, I think you should definitely discuss this option with him. Don't be put off either, surgeons were tin gods back in the old years, now they are responsible for all there actions and can be sued very easily if things go wrong.

jalevinemd

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Myelogram - anyone had one?
« Reply #8 on: April 19, 2009, 05:06:00 PM »
I was assuming that Shaun already had the MRI. Very often surgeons will still ask for a CT myelogram, though. Particularly if the MRI findings don't entirely explain the physical symptoms or if post surgical changes make interpretation difficult. Clearly, though, we do far less myelography than we used to.
 
(Message edited by jalevinemd on April 19, 2009)

willie

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Myelogram - anyone had one?
« Reply #9 on: April 20, 2009, 03:54:54 PM »
BigBadBill
I had a Myelogram back in about 1991 after injuring two discs in my neck driving tractor trailers. I bent 3 needles because I tightened up because they use an X-Ray screen to guide the needle between the vertabrae into the spinal cord. Don't Look at the screen if you have it done. Than they hung me upside down so the dye would flow up my spinal cord. Tremendous pain. Felt like I was being crushed as the dye flowed. I ended up not getting the operation then. Waited till 03 for the first neck operation after seeing many Neurosurgeons none of whom asked for myelogram, all wanted MRI's.After that operation C-6 and C-7 didn't fuse well so had it redone in 05. My neck still hurts but not as bad as before but more nerve damage after operation. Last year I had a very serious back injury and was paralyzed from chest down. Needed 3 emergency back operations over the next week and was very close to dying. All the Neurosurgeons did was MRI's with that too. Cervical, Thorasic and lumbar with and without contrast.
Thats 5 spinal operations all done after MRI's.
I would suggest finding a surgeon who will do the MRI, try to stay away from the Myelogram.
And take it from someone with a little experience with this subject, Don't get an operation unless you absolutely need it.
If I could go back I would not have had my neck done. The 3 back operations I didn't have much choice. It was that or be paralyzed for another day or two and than die.
It's been a tough year but I can walk again. Doctors say at least 2 years to heal. But one of the first things I tried to do after getting home from the hospital was to play my basses. It was a little hard in a back brace and all the pain. I couldn't even lift one. And I'm still playing them and just started back to work part time after 4 months in a back brace, 8 weeks doing my own IV's at home through a PIC line and 6 more months stuck home in bed except for therapy and doctor visits.
I've seen enough Neurosurgeons to almost be one.  
What is your problem if you don't mind me asking?
Obviously either a herniated bulged or deteriorated disc somewhere. What level is it at and how much pain are you in? Any numbness, weakness or pain in extremities or just pain in your back.
Let me know if you want to talk about it more or if you have any more questions.
Best of luck to you and I hope it works out well if you do end up getting the operation.
Willie

peoplechipper

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Myelogram - anyone had one?
« Reply #10 on: April 20, 2009, 11:22:59 PM »
Willie,
Any time I whine about my ruined spine(2 smushed vertebrae/split tailbone; later re-injured in a high-speed car/bike accident-me on bike..) I  realize it could be SOOO much worse...thankfully you are recovering and hopefully are one day pain free...If I find the solution first I'll pass it on, but after 22 years I dunno...mind you, I'm alive and walking, so what's a little ache? Tony

willie

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Myelogram - anyone had one?
« Reply #11 on: April 21, 2009, 12:24:50 AM »
Tony
I can definitely relate the bike accident. Motorcycles, (motocross) and byclcles. When I was 16 I got hit by a tractor trailer while riding a 10 speed. Flew 100 feet in the air and landed on a cable type guardrail. Was given 0-5% chance of living. But I survied some very serious injuries from that and actually had to pass that intersection where I was hit when leaving my terminal in a tractor trailer for each trip that I made when I became a tractor trailer driver myself. Imagine that, what are the chances?
And I know what you mean, it could be WORSE.
I spent over a month in the hospital for the 3 back operations and alot of that in intensive care in the Neurosurgery dept. Graduated up to a wheel chair than a walker than on my own. I will never be pain free. I have rods and plates across 3 vertebrae in my neck and and ten in my thorasic spine . I missed a whole year of fishing and I was on a major quest to catch a Muskie over 50 inches long. But I will be back fishing for him very soon and some of that time will be wading in the river after him,it'll hurt but I'm determined to do it..
Let me know if you find that solution, I could really use it and yes I'm alive and walking too.
And they say thats a good thing.
Best of luck to you with your situation.
Willie

bigbadbill

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Myelogram - anyone had one?
« Reply #12 on: April 21, 2009, 09:15:33 AM »
Willie and Tony, when I read stuff like yours I feel like a fraud. I have a prolapsed disc at C5/6 with nerve root compression and another at L5/S1 likewise(they aren't doing anything with that). I also seem to have some minor (?) thoracic problems which they won't look into (expense being the issue).
 
I've had 2 MRIs already, one both lumber and cervical and the last one just cervical. The first MRI ( a few years ago) showed the cervical prolapse to the right, whilst the second showed a central bulge impinging on both sides; I guess something has moved. I have coldness, pins and needles, muscle spasms, weakness etc in both arms, back and legs which can vary not only day to day but minute to minute. Sometimes if I jar myself I get pins and needles in my face too. I also get sensations like electric shocks down my ribs, abdomen and occasionally my legs (as well as some areas I won't go into!), and have various other symptoms I won't bother expanding on. The consultant doesn't think the last MRI shows sufficient compression to explain my symptoms, hence the myelogram. Willie, you're the 2nd person I've spoken to in 2 days who's had one who has advised me against it, which is somewhat worrying! I had got to the stage where I was struggling to use my right arm, hence my referral, but I've recently been going regularly to a different chiropracter and it seems to be helping no end; not a permanent fix I guess but it's keeping me ticking over, although I still  suffer some pain and very occasionally walking is hard work (although other days it's fine). Wearing a bass for any time is a struggle too. i must admit though as my symptoms have currently eased I can't help wondering if it's worth it, although I'm aware of the fact that that could change anytime.
 
Regardless, my problems are utterly insignificant compared to what you've been through. My thoughts go out to you and Tony (and anyone else with such problems)and I hope you get through everything ok.

precarius

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Myelogram - anyone had one?
« Reply #13 on: April 21, 2009, 02:20:21 PM »
I can feel everybody's pain (except willie- I can't imagine that much pain). I have degenerative disc disease and have had fusions- bone,plates, and screws- at c4-5, c5-6, and c6-7. The neurosurgeon said I will continue having them until they find a cure for DDD. I have gone through arms and shoulders not working right for months at a time, but right now I can still play my Alembics so I am happy. Lower back is still OK so I am blessed. I feel for anyone going through this.
Mike

peoplechipper

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Myelogram - anyone had one?
« Reply #14 on: April 28, 2009, 01:11:40 AM »
Bill, if anyone is the pain hero here it's Willie; Man, he's been through hell...perhaps I was lucky that I was 21 when I first broke my back; too dumb and stubborn to realize I'd done something serious, and young enough to mostly recover from it...my Chiropractor has been a good friend for more than 20 years now...
 
Frankly, it sounds like you have severe nerve pinching and you need to find out where and why...the test may help find the best route to health with the least invasive approach or localise the main pinch...maybe there's a Chinese Herbalist solution? massive doses of shark cartilage to build up the discs?
 
Bill, don't feel like a fraud. I can't imagine what Willie's been through, I walked away from my accidents (first one with help), but for us we can distinctly trace our aches; for you it was probably more subtle (improper lifting, etc.) Do whatever you can to get better. I'm nowhere near as acute as you in the pain department, I can't imagine not doing all I can if I was in your shoes...do everything; for yourself and those around you...good luck, Tony.