Author Topic: Looking for the love . . . (Read 2470 times)

peoplechipper · « **Reply #46 on:** July 03, 2014, 11:30:56 PM »

The best thing is WHEN he beats this he's gonna grow up to be an amazing guy/Dad/whatever...he will have perspective on things that a lot of us wish we had, but gladly don't, if ya know what I mean...Tony

pauldo · « **Reply #47 on:** August 01, 2014, 08:02:12 AM »

Latest update:
Isaac is going in for the T-Cell infusion therapy on September 2nd.

My brother revealed to me last weekend, that Isaac is the first child with Downs Syndrome to have this done. I guess we will find out if having an extra chromosone makes a difference.

Meanwhile - Isaac found himself on stage again . . .

:-D

tubeperson · « **Reply #48 on:** August 01, 2014, 08:06:34 AM »

I will be adding to the prayer pool this weekend. He seems at home behind the kit. Bang away young man!

peoplechipper · « **Reply #49 on:** August 01, 2014, 10:49:59 PM »

He doesn't look like Down's syndrome...he looks like a really young Phil Collins with a shaved head, especially behind the kit...Healing vibes sent! Tony

peoplechipper · « **Reply #50 on:** August 01, 2014, 10:52:51 PM »

He doesn't look like Down's syndrome...he looks like a really young Phil Collins with a shaved head, especially behind the kit...actually, he just looks like a kid being as happy as possible given the circumstances, which we could all learn from...Healing vibes sent! Tony

pauldo · « **Reply #51 on:** August 24, 2014, 02:54:18 PM »

Last Tuesday Mt. Horeb had a special 'going to get better' party for Isaac. The community raised an incredible amount of money to help my brother and his family - it warms my heart and makes my eyes teary to be able to observe REAL humanity in action.

Isaac and his mom and dad are in Philly now; they will be there for 6 weeks. Family is gathering to stop in and check on their teenage boys who have the run of the house!

Meanwhile Isaac got behind the drums again.
If he keeps looking so joyful behind that set I might have to switch instruments - obviously there is something good going on there!

wfmandmusic · « **Reply #52 on:** August 24, 2014, 07:15:07 PM »

Hey Paul, I'm here in Philly so if your brother and his family need anything please just let me know. I can at least cook them a nice home cooked meal and have them hang out at my house, whatever.

peoplechipper · « **Reply #53 on:** August 25, 2014, 12:35:07 AM »

He looks so joyful playing drums; hopefully he can have a long career spreading that joy from a drum seat...we make fun of drummers but I often think it's from jealousy really; drums are the pulse and the spine at once, bass can also be the pulse( and maybe the blood pressure?!) but if the drums be lacking, it all is lacking...Tony

pauldo · « **Reply #54 on:** August 25, 2014, 09:17:44 AM »

Ken - that is very generous, I sent you an e-mail.

Here is the itinerary for Isaac's upcoming events. Throw some well thoughts in the air for the boy!

Monday (today): Isaac starts chemo to reduce his T-cell numbers, to make room for the engineered T-cells. He will have chemo during several days the 1st week, along with a lot of outpatient pre/tests. After Labor day he will have a sedation, bone marrow sampling, and blood work on Tuesday, and will start his re-infusion of engineered T-Cells on Sept 3rd, if things go as planned.

David Houck · « **Reply #55 on:** August 25, 2014, 10:15:28 AM »

Thanks for the itinerary. Will send healing energy.

pauldo · « **Reply #56 on:** August 29, 2014, 05:02:13 PM »

Video release of Isaac's drumming skills:
https://youtube.com/watch?feature=youtu.be&v=TeP4uK_raog

If anyone has the ability to capture the video from the links and convert them to a wmv/ mov or similar format it would be greatly appreciated.

Thanks - next week Isaac will need a little extra love.

flpete1uw · « **Reply #57 on:** August 29, 2014, 06:09:25 PM »

Isaac's life and the spirit that surrounds him gives more to others than he potentially receives.
This child, this amazing child is a tsunami of Love.
Peace and Prayers to all,
Pete

pauldo · « **Reply #58 on:** September 14, 2014, 01:05:43 PM »

Props to everyone who has given the healing thoughts and prayers.
Isaac had his T-cell infusion on Sept. 4th, and so far other than some tiredness he is doing very well!

Thank YOU!

David Houck · « **Reply #59 on:** September 14, 2014, 01:42:39 PM »

Good to hear; and thank you!

(Message edited by davehouck on September 14, 2014)