Looking for the love . . .

[David Houck]

Sending healing energy.

[lbpesq]

Good wishes and positive vibes for a full recovery.  May Isaac be playing drums for many years to come.
 
Bill, tgo

[dead_head]

Prayers and thoughts for Isaac and your family, Paul. Best wishes for a speedy and complete recovery, and comfort to you and yours.
 
Rob

[jacko]

You have my prayers Paul and so do you Thomas. I know it sometimes feels a bit strange asking strangers for their love but I know from my own experience a year or so ago that reading the messages of love and hope on our forum does help.
 
graeme

[5a_quilt_top]

Positive thoughts and healing vibes sent from AZ.
 
Isaac has whipped it twice already and he can do it again.

[jalevinemd]

Thinking of you and your family.

[edwin]

What Graeme said. It's real.

[mikedm]

Paul,
 
Prayers lifted for Isaac, your brother's family, and you and yours.
 
Mike

[pauldo]

Sincere thanks to everyone - we truly appreciate it and believe in the power of many.
 
Please give up some fresh vibes, thoughts and prayers.
Given that this is Isaac's third time around they have opted for the T-cell modification treatment. . .  Kinda scary to this lay man, but potentially superior results.
 
About 6 weeks before his T-cells are ready.
 
Will update.
Thank you all.

[rustyg61]

More prayers sent up for Isaac's healing & for the family to endure the wait for the T cells to be ready.

[pauldo]

Update:
Isaac's T-Cells are sitting in a freezer at CHOP (Children's Hospital of Philadelphia) untouched awaiting for some suit to change current practices. Apparently Wisconsin's legislators have decided that they can not support treatments out of state (Isaac qualifies for state medical assistance). At this time there is not enough money to keep the ball rolling and CHOP is the facility that is THE place for T-Cell modification treatment.
 
Please keep the thoughts and prayers coming, not only for this new snafu but also for Isaac and his family - in particular my brother; he is feeling like Atlas right now and seeing him carry this burden frightens me.
 
 
 
(Message edited by pauldo on May 15, 2014)

[slawie]

Is there any way that a petition to legislators can be started?
 
Our extended support network may be able to provide some signatures to help the cause.
 
In the meantime prayers and positive thoughts are being radiated out to Isaac and all those who love him.
 
slawie

[pauldo]

Slawie,
Thanks for the support.
Right now my brother has a lawyer who is connected and working through appropriate channels that hopefully will reveal a resolution.
 
Your idea is a sound one. Others have suggested contacting the media and making this more 'public'; however at this time my brother wishes to keep this out of the media and public forum. I respect his families wishes - although getting something like this in the media would certainly put the politicians in a position to react quickly.
 
thanks again!
 
P.S. - I understand that this area is public, but I like to think of it more as Family. - love you guys! :-D

[slawie]

No worries I understand.  
I am a member of Change.org. It's a place to put up petitions
That folks can sign.  
If it ever comes to the time where the notion of an online petition is required let me know and I will be onto it.  
In the mean time all love and respect to your family from my family
slawie

[pauldo]

You guys did good!
Isaac's parents had a hearing scheduled for today to get funding.  
Apparently the state decided that it would be OK to allow Isaac to have this treatment - they actually cancelled the hearing before it even started!
 
I'm guessing the fact that Meg Gaines was their council made them reconsider.
Here is some background on her:
http://www.bravamagazine.com/BRAVAMagazine/0512MegGaines.aspx
 
Thanks again for the positive thoughts, prayers and good ju-ju!
 
Isaac's T-cell modification therapy is back on schedule. Will update as it unfolds.